Dementia Diary

keep a dementia diary

I recently read an article in the magazine “Yours” about Pat Johnsons and her husband Peter’s  journey with dementia.  She urges partners to seek a diagnosis as soon as they realise something is wrong with their spouse as early diagnosis is is vital.

Pat kept a journal and and a dementia diary and  kept detailed notes about how the condition affected Peter. She was also  a member of the “Yours” “Carers in Touch” scheme and said that contact with other carers was vital.

Her parting words in the article were;

” The most important thing to do is to seek help, no-one should care for someone with dementia without support”

Her tips for other dementia carers included:

  • Seek medical help as soon as you suspect there is a problem.
  • Keep a detailed dementia diary, (I like this idea and think it is a brilliant) it will help you remember facts at hospital appointments.
  • Write down your feelings . It helps to release pent up frustration and emotions.
  • Join a local support group and the Carers in Touch scheme.
  • Find a friend for times of crisis and don’t be afraid to seek help
  • Look after your own health.

These are really useful tips from someone who has been there, done that and got the T-shirt!

It is useful to bear in mind we are not alone in the situation of caring for a partner who has a diagnosis of dementia although initially it may feel that way.

Enhanced by Zemanta

Award-winning blogger and former care columnist for Devon Life magazine. I am passionate about helping elderly people and people with dementia live purposeful and independent lives.
Designer of the Dementia Assistance Card and Points Of Light award recipient, Caron hopes to help carers when resources are limited and demand is ever-increasing. I am here to support you.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.