Dementia Diary

keep a dementia diary

I recently read an article in the magazine “Yours” about Pat Johnsons and her husband Peter’s  journey with dementia.  She urges partners to seek a diagnosis as soon as they realise something is wrong with their spouse as early diagnosis is is vital.

Pat kept a journal and and a dementia diary and  kept detailed notes about how the condition affected Peter. She was also  a member of the “Yours” “Carers in Touch” scheme and said that contact with other carers was vital.

Her parting words in the article were;

” The most important thing to do is to seek help, no-one should care for someone with dementia without support”

Her tips for other dementia carers included:

  • Seek medical help as soon as you suspect there is a problem.
  • Keep a detailed dementia diary, (I like this idea and think it is a brilliant) it will help you remember facts at hospital appointments.
  • Write down your feelings . It helps to release pent up frustration and emotions.
  • Join a local support group and the Carers in Touch scheme.
  • Find a friend for times of crisis and don’t be afraid to seek help
  • Look after your own health.

These are really useful tips from someone who has been there, done that and got the T-shirt!

It is useful to bear in mind we are not alone in the situation of caring for a partner who has a diagnosis of dementia although initially it may feel that way.

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Award-winning blogger and care columnist for Devon Life magazine, Caron also campaigns for recognition of the needs elderly people and their carers. Designer and creator of the award-winning Dementia Assistance Cards which are free to all, and helping thousands of people globally Caron is passionate and committed to making a difference

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